Steering Committee

*Biographies provided by the committee members

Mark Patterson, MD, PhD

Dr. Patterson is a pediatrician with Carilion Clinic in Roanoke, VA and is on the faculty of two area medical schools. Prior to switching to medicine, he obtained his PhD in biological chemistry from the Massachusetts Institute of Technology and spent several years performing research in the then fledgling field of biotechnology. He has been practicing clinical pediatrics for over 20 years; additionally, he teaches third-year medical students and pediatric resident physicians. Dr. Patterson's interest in narcolepsy and cataplexy started when his then 12 year old daughter was diagnosed with these conditions in 2004. Since that time he has been actively involved with the national non-profit organization Narcolepsy Network and currently serves on its Board of Trustees. He is the developer of QR-coded medical alert materials for use by patients with narcolepsy, is the founder of the annual Narcolepsy Bed Race, and gives presentations on narcolepsy at national sleep and pediatric conferences.

Michael J. Thorpy, MD

Dr. Thorpy is a professor of clinical neurology at Albert Einstein College of Medicine and director of the Sleep-Wake Disorders Center in the Department of Neurology at Montefiore Medical Center, both inNew York. In addition to treating patients with sleep disorders, he conducts research in narcolepsy, insomnia and sleep apnea. He is President of the New York State Society of Sleep Medicine. He has published more than 100 peer-reviewed articles and chapters. Dr. Thorpy received the Nathaniel Kleitman Award from the American Academy of Sleep Medicine, one of the field's highest honors, and the Lifetime Achievement Award from the National Sleep Foundation.

Thomas E. Scammell, MD

Dr. Scammell is a Professor in Neurology at Harvard Medical School, Beth Israel Deaconess Medical Center, and Boston Children's Hospital. He is a member of the International Classification of Sleep Disorders Task Force and a former member of the Sleep Research Society Board of Directors and the APSS Program Committee. The author of over 100 journal articles, Dr. Scammell has lectured both nationally and internationally on narcolepsy and the neurobiology of sleep and wakefulness. His current research interests include identifying how loss of orexin signaling results in sleepiness and cataplexy, interactions of sleep and pain, and the cause of sleepiness after traumatic brain injury.

David Pasta, Vice President, Medical Affairs Statistical Analysis

David Pasta is Vice President, Medical Affairs Statistical Analysis, at ICON plc. David has over 35 years of experience as a statistician and has authored over 110 peer-reviewed publications and an array of other publications and presentations. His areas of focus include the analysis of multiwave longitudinal data, statistical adjustment of group baseline differences, and the use of statistical graphics. Much of his work has been in the application of statistics to health-related information reported by patients, including health-related quality of life, patient satisfaction, and the psychosocial aspects of human reproductive behavior. He also has extensive experience working on clinical outcomes, especially in cystic fibrosis, and the economics of healthcare and in other fields such as educational program evaluations, criminal recidivism, and sampling of hard-to-sample populations. David earned his undergraduate degree in statistics from Princeton University and graduate degree from Stanford University. Previously he was president of his own statistical consulting, data management, and scientific software development company and founding director of the data management and analysis unit at Technology Assessment Group in San Francisco, later Lewin-TAG, a subsidiary of Quintiles Transnational.

Jed Black, MD

Dr. Black is employed by Jazz Pharmaceuticals as vice president and therapeutic area head of sleep medicine, research and pharmacology. In this capacity he guides multiple teams focused on the development of medications for the treatment of sleep disorders. In addition, Dr. Black is consulting professor, Stanford Center for Sleep Sciences and Medicine, and former full-time professor and medical director of the Stanford Sleep Center. In his capacity as Stanford faculty, Dr. Black worked for over 20 years with the pharmaceutical and device industry in central nervous system (CNS) and sleep clinical research and development.

Dr. Black received his medical residency training, with additional focused training in clinical neurosciences research, at Yale University. He completed subsequent postdoctoral training in sleep medicine and clinical sleep research at Stanford University and is board certified in sleep medicine. During his tenure at Stanford, Dr. Black has led a productive research team conducting clinical research in the areas of narcolepsy and hypersomnia, conditions of sleep-related breathing disturbance, insomnia, and restless legs syndrome. He has authored numerous abstracts, articles, and book chapters reporting this work.

Kathleen F. Villa, MS

Kathleen is the head of health economics and outcomes research (HEOR) at Jazz Pharmaceuticals and has been in the field of health outcomes research for the past 18 years. Kathleen has authored and collaborated on dozens of peer-reviewed publications and scientific presentations on the economic and humanistic burden of health conditions such as narcolepsy, schizophrenia and stroke. She has also studied the economic impact and cost-effectiveness of many new pharmaceutical interventions. Kathleen has extensive experience in observational research, economic modeling, claims database analysis and patient-reported outcomes.

Maurice M. Ohayon, MD

Dr. Maurice M. Ohayon is John-Arrillaga PI & Professor of Psychiatry and Behavioral Sciences at the Stanford University. He is at the Chief of the Division of Public Mental Health and Population Sciences and he is the Director of the Stanford Sleep Epidemiology Research Center. He is a physician (MD), psychiatrist and Doctor in Mathematics and Computer Sciences (DSc). He also has a PhD in Biology. He has authored or co-authored over 200 articles and book chapters and he wrote 5 books in psychiatry, computer sciences and sleep medicine. Over the last 20 years, his research has focused on the epidemiology of sleep and mental disorders in the general population and on artificial intelligence tools. He is leading several research projects on sleep and related disorders in the European and American general population. He also served on the DSM-5 sleep wake disorders workgroup (sections Insomnia, Hypersomnolence and Restless Legs Syndrome).

Monica Gow

Monica Gow, Executive Director & Co-Founder, oversees strategic implementation of the WUN mission. She has 10 years of experience in the insurance field in companies such as UNUM Insurance and Tufts Associated Health Plan. She is a certified elementary school teacher and is the mother of three children. Monica and her husband, David, were motivated to bring awareness and education to the narcolepsy community when their son was diagnosed in 2008. She is extremely passionate about the need to advocate for people with narcolepsy, increase narcolepsy awareness and support research.