The NEXUS Narcolepsy Registry research study is now complete and the registry is closed.
We thank you for your participation in this important research!
As a direct result of your participation over this multi-year study, two manuscripts were published and several abstracts and posters were presented at conferences. All of which helped researchers and clinicians better understand narcolepsy.
You may read the two manuscripts that were published by following these links:
The Nexus Narcolepsy Registry: methodology, study population characteristics, and patterns and predictors of narcolepsy diagnosis
https://doi.org/10.1016/j.sleep.2021.06.008
Highlights from this manuscript include the following:
Assessing the impact of sodium oxybate treatment on functioning, productivity, and health-related quality of life in patients with narcolepsy: findings from the Nexus Narcolepsy Registry (waves 1-4)
https://doi.org/10.1016/j.sleep.2021.06.010
Highlights from this manuscript include the following:
If you would like the opportunity to participate in future research studies related to Narcolepsy, please register an account on the Invitae Narcolepsy CONNECT PIN at this link:
https://connect.invitae.com/org/narcolepsy
We will share invitations to participate in future research studies as they become available with those who have accounts on the Invitae Narcolepsy CONNECT PIN.
Thank you again for your participation in this important research!